HHS OCR Issues GINA Notice of Proposed Rulemaking
October 1, 2009
The U.S. Department of Health and Human Services (HHS) Office for Civil Rights (OCR) has issued a notice of proposed rulemaking to strengthen privacy protections for genetic information under the HIPAA Privacy Rule, as required by the Genetic Information Nondiscrimination Act of 2008 (GINA). GINA gives individuals new privacy and nondiscrimination rights with respect to the use of genetic information in health insurance decisions and employment. The proposed rule would modify the HIPAA Privacy Rule to clarify that genetic information is health information and to prohibit the use and disclosure of genetic information by health plans for underwriting purposes. The proposal includes a 60-day public comment period.
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